Harrison’s Fund was founded in 2012 after Harrison’s parents were told that he had Duchenne Muscular Dystrophy. Duchenne is a fatal muscle wasting condition which means that all the muscles in the body will deteriorate over time. Currently there is no cure and the life-expectancy for someone with Duchenne is just 25 years..
Harrison’s Fund exists to put as much money as possible into the hands of the world’s best researchers who are working to find treatments and a cure for Duchenne. Since we were founded, Harrison’s Fund has invested over £1.5million in research, some of which has led to the first treatments being available to some children affected by Duchenne.
A cure may not come in time for Harrison, but we are determined that his generation will be the last to suffer from the profound effects of the condition. We fund research that brings potential treatments out of the labs and into human clinical trials as quickly as possible so that we can give hope to the 2,500 people in the UK who live with Duchenne.
Alongside this work, we are also providing advocacy and support to families who have a child with Duchenne. We are here to give advice, provide information and a listening-ear to those who feel isolated and uncertain about their child’s future.
